Here’s an interesting article from the Concord (NH) Monitor. This is about nursing home staff who allow others to make health care decisions for able-minded nursing home residents. Does any of this ring a bell for anyone?
Nursing home residents throughout the state are medicated without their knowledge, barred from receiving visitors and ignored when they request changes to their medical care, according to the state agencies that monitor their welfare.
Although most of New Hampshire’s 231 nursing homes and assisted living centers try to include residents in decision-making, recent inspections and reports to the state’s long-term care ombudsman reveal that elders’ rights are often overlooked.
In one case, a woman was placed in a locked ward and barred from seeing her attorney. In another, nurses reinserted a feeding tube after a man repeatedly tore it out, tied it in knots and asked to have it removed. Others seniors found pills tucked into their food or were forced into painful physical therapy.
I’ve seen all of these things happen, on a daily basis. Residents who aren’t “allowed” to attend their own care plan meetings; residents who refuse treatment, care, meds…nurses who dump meds into drinks and eggs at breakfast…and yes, residents are forced to go to PT sessions they would rather not be at. And have said so. I’ve also seen residents forced out of bed at certain times; showered vs. a requested bath- at a time of staff’s choosing; who hasn’t seen staff tell residents they HAVE to eat at predetermined times or go without? Happens every day.
Much of what this article is about though is the family connection…the resident’s family makes choices and decisions they really have no right to do.
Most problems, he said, stem from misunderstandings about one document: the durable power of attorney for health care, which allows a person to designate someone to make health care decisions in case he or she is unable to do so. The power of attorney must be activated by a doctor or, under a law that went into effect this year, a nurse practitioner who determines that a person is unable to make an informed choice. Even when the power is in effect, the patient almost always retains ultimate authority. Health-care providers must review treatment options and, in most cases, heed a person’s verbal orders. Should someone regain decision-making skills, the power of attorney can be deactivated.
When a family member roars, we run and do whatever they say. It’s not always right though.
But Rabun says many families and health professionals view the document as carte blanche to decide nonmedical details of a senior’s life, such as where he or she lives or who he or she socializes with. In one recent case, Rabun received a call from a lawyer who had been barred by nursing home staff from seeing her client. The home, Rabun said, had been ordered by the woman’s son, who held her health care power of attorney, to keep her in a locked ward without visitors.
“This person was literally incarcerated,” he said. “In many ways, this is worse than prison. At least in prison, you can see your attorney.”
When someone holds DPOA over another person, it does not mean the holder has the right to control every aspect of life the person lives…or in some of these situations, doesn’t live in the way they want. I often hear nurses say things about “We have to ask the guardian first”– before a resident is “allowed” to go to a dance with another resident; before a resident is “allowed” to dine at the same table with certain others…it’s all really silly when we look at it. But we look at the wrong things sometimes. We try to limit the small things and overlook the bigger ones.
And with the medical stuff, we overstep our bounds:
Even in a medical context, the forms are often misused. Last year, state health inspectors found numerous instances of nursing homes bypassing seniors to seek permission from family members to administer drugs or other treatments.
Last spring, inspectors determined that Haven Health Center of Derry ignored a man’s repeated requests to remove his feeding tube. According to the report, the man had left written instructions that he didn’t want the tube and granted his wife power of attorney for health care.
He arrived at Haven Health in May 2005 with a feeding tube in place, the report said. Throughout the next year, he removed it five times, tied it in knots and told staff members to remove it. Each time, the report said, it was reinserted at the family’s request. The report included nurses’ notes from April 2006 that said: “I asked resident if resident realized that without the tube (he) would die. Resident said resident did not care. I explained to resident that wife does not want (him) to die and that she is the one with legal control.”
Mark McKerley, the home’s administrator, said the situation was resolved soon after the inspection. Staff members, he said, helped the family create a treatment plan that met the resident’s wishes and the family’s emotional needs. Now, the home keeps closer tabs on its 62 residents’ wishes and calls the ombudsman for advice when a tricky situation arises.
I don’t think most who work in LTC know that the resident ALWAYS has the final say. Period. No matter what family wants. No matter what the papers say. So long as the resident is not demented, they should have the last word. And we should respect this. But we don’t.
Though his office handles dozens of complaints each month, Rabun suspects that he hears from just a fraction of frustrated elders. Nursing homes are required to post contact information for his office and furnish residents with a bill of rights, but he says people often fear retribution for making a complaint. (Rabun’s office also serves as a clearinghouse of information for families and long-term care facilities curious about residents’ rights.)
When seniors do call, they’re often confused and emotional. Recently, Darlene Cray, a member of Rabun’s staff, visited a man and woman living in the same long-term care center. The two had formed a close bond: She called him her boyfriend and, as his health declined, he asked to see her often. But the man’s family ordered the staff to keep them apart.
“There was one evening he was very ill and said, ‘Don’t leave me, don’t leave me,’ ” Cray said. “The staff tried to physically remove her from the room.”
It’s sad but who hasn’t seen this scene before? I have, many times. Nurses direct aides to do this work, and it really tugs at our hearts…but the family doesn’t agree to the relationship, is what we’re told. For a long time we believed families and guardians had the right to separate their loved ones from other residents. They do not. No one does.
A good place to turn to is your state ombudsman’s office. They are trained to deal with ALL of these situations and help ALL involved come to a reasonable agreement…while keeping the residents’ right first in mind. The next time you find yourself in a situation similar to these, STOP AND THINK. Is the resident able minded? If so, consider how YOU would feel if someone tried to stop you, or force you, into something you didn’t agree with, want, need or understand. I recommend those who read this article to print it up, bring it to work and share with your DON and Administrator. This is a great in service topic.