Residents with dementia: Who are WE to decide who they have relationships with? This is a thought provoking article.

Bob’s family was horrified at the idea that his relationship with Dorothy might have become sexual. At his age, they wouldn’t have thought it possible. But when Bob’s son walked in and saw his dad’s 82-year-old girlfriend performing oral sex on his 95-year-old father last December, incredulity turned into full-blown panic. “I didn’t know where this was going to end,” said the manager of the assisted-living facility where Bob and Dorothy lived. “It was pretty volatile.”

Because both Bob and Dorothy suffer from dementia, the son assumed that his father didn’t fully understand what was going on. And his sputtering cell phone call reporting the scene he’d happened upon would have been funny, the manager said, if the consequences hadn’t been so serious. “He was going, ‘She had her mouth on my dad’s penis! And it’s not even clean!’ ” Bob’s son became determined to keep the two apart and asked the facility’s staff to ensure that they were never left alone together.

After that, Dorothy stopped eating. She lost 21 pounds, was treated for depression, and was hospitalized for dehydration. When Bob was finally moved out of the facility in January, she sat in the window for weeks waiting for him.

People with dementia should have rights too. But until we loosen up a little, they won’t.

A what?

Thanatology
The study of death and dying, especially in their psychological and social aspects.

I have never heard of this profession until I received an email from a woman who does this for a living. And I am amazed.

From Donalyn’s web site:

Dr. Donalyn Gross, PhD., LCSW, CMP, Thanatologist
D. Gross, PhD., LCSW, CMP, Thanatologist, has worked with the terminally ill and their loved ones for over thirty years. She has worked in hospitals, correctional systems, been a hospice volunteer director, has taught college courses in death and dying, and gives workshops on death and dying issues.

Donalyn created a program called Good Endings.

At her web site, Donalyn offers training materials for nursing home staff who work with people who are dying- so this encompasses all nurses and CNA’s of course:

GOOD ENDINGS-Caring for the Dying Resident-A Guide Twelve page booklet dealing with the end of life issues for those in the nursing home and health care agency field. Provides strategies and insights for caregivers. It includes Five Stages of dying, Problems Associated With a Terminal Diagnosis, How We Can Help The Dying, Physical Signs of Active Dying, and After A Death. $2.00 each booklet plus s/h.

We have written here many times how CNA’s are not prepared to deal with the emotional aspects of the death process. We even lack good training when it comes to Hospice practices in all honesty. I think any education on this matter is worthy of having on hand. Donalyn sells booklets which can be shared with staff and perhaps an in service can be developed based on her program. She offers on site training for nursing homes located in the North East region of the US.

Additionally she offers CD’s with her own music, which she uses harps as a means to relax people who are in the process of dying. She authored an article on this topic at Long Term Care Living recently.

Be sure to check this out. The booklets alone would make an excellent addition to Staff Develop book resources.

Frances Shani Parker used to be a school principal. Then she became a hospice volunteer and has written about her experiences in nursing homes. I received a copy of her book and it is excellent. I recommend it to anyone who works in a hospice setting, and for all CNA’s as well. I will venture to ask that DON’s and Administrators have a look too. Sometimes people in higher places at nursing homes forget some of Frances’ important lessons.

You can purchase her book HERE.

Also, Frances has a blog HERE.

We have finally added a printing function to all posts and pages here at NursingAssistants.Net

The Printing Function can be found at the top of each page: Either as a stand alone link (for pages) or as part of the small print credit directly below the title of posts. The link takes readers to a PRINTER FRIENDLY page. Readers no longer have to email us to receive Text/Word versions of our articles! You can simply print them up yourselves now.

Here’s a sample of what a printer friendly page looks like.

Also as you’ve noticed, (yet) another new theme is being used. The other theme was difficult for IE users to view the site with; this theme is better AND we recommend everyone get the FireFox Browser. It’s designed for the new Web.2 Internet, and all sites appear better using FF. It is much more secure than IE or the other browsers and offers thousands of Add Ons created to make web browsing more productive, fun and interactive.

A nursing home in New York City cut off health benefits to it’s staff over last summer, and they have been on strike since February.

After three wearying months of walking the picket line, 220 nursing home workers at the Kingsbridge Heights Rehabilitation and Care Center in the west Bronx have had plenty of time to sharpen their message.

“Health care workers like us should have health care coverage,” said Jacqueline Simono, who has worked for 10 years at the six-story, 400-bed nursing home.

In August, the nursing home stopped paying the workers’ health insurance premiums, and as a result, their coverage was cut off. That, the workers say, was the main reason they went on strike on Feb. 20.

The workers, members of 1199 S.E.I.U. United Healthcare Workers East, say they are expecting the National Labor Relations Board to give them some good news soon to help end the strike.

Sadly, those on strike are not earning any income and I cannot imagine how they are making ends meet right now. The costs of health care benefits is skyrocketing for everyone- not just health care workers. We’re seeing more and more businesses from every sector dropping coverages or increasing premiums.

Reading the rest of this article, it isn’t clear what’s really going on here. One thing: If these staff belong to a union, it is the unions’ job to make sure benefits are part of any bargaining plan. Somehow, somewhere, someone let the ball drop here.

I did a little digging into this situation and found a couple articles worth mention.

From a May 7th article:

NEW YORK–About 5,000 members of 1199SEIU from across the Northeast rallied May 3 to support 220 strikers at the Kingsbridge Heights Nursing Home, whose owner, Helen Sieger, has refused for six years to sign a contract with SEIU or pay into the 1199 health benefits fund.

The overwhelmingly immigrant strikers entered the rally at Fort Independence Park in a boisterous show of force, calling on a broad spectrum of militant national labor traditions.
[…]
Bartosz and Tomas, two strikers from Poland, described Helen Sieger’s anti-labor practices: “We have no sick days. We have no health benefits. We are required to arrive at 10:30, but are only paid from 11:00 on. Though we should finish at 7:00, we often have to work later, also without pay.”
[…]
A number of federal, state and city politicians and union officials spoke at the rally, including SEIU President Andy Stern and Sen. Charles Schumer. Barack Obama spoke through a recorded message. SEIU members from Albany and Rochester, N.Y., turned out, along with others from Massachusetts, New Jersey and the Washington-Baltimore area.

The rally highlighted the role that immigrants play in organized labor. A win for the Kingsbridge workers will be a victory for both the immigrant rights and labor movements.

There were not 5000 people at any rally for this. That is a gross exaggeration. Using militant strike methods wins few friends in these causes; however, asking politicians to speak on the behalf of those on strike is admirable.

The fact that many of those on strike are immigrants leads me to ask the tough question: Are they legally entitled to work in the US? Are these people just doing another job Americans won’t do? I wonder how many American CNA’s worked for this facility?

Finally, I ask this: If there is a strong union here, HOW do we explain such bad working “conditions” that include no sick days, not being paid for actual times worked, and so on? In many places of employment, meal breaks are not paid time. So, employees are expected to be on premises for 8 1/2 hours- eight of which are paid and the other that is not. And exactly how much longer were they made to stay over 7:00? A few minutes or hours? If minutes, then this issue is moot. If hours, then there is a serious problem. The devil is in the details, and we’re not getting those.

I also found the latest survey information for this facility. As usual, it doesn’t provide a clear picture of the facility, but all in all it isn’t THAT BAD. I have no doubt this place is a dungeon to work in; I also have little reason to believe the management gives one hoot about the workers. But my instincts tell me we’re not being given ALL the facts.

I ask people to be skeptical on these articles because the lack of detail can make a huge difference. A unionized nursing home should NOT have these issues. A union that has failed it’s members, however, might encourage a strike just to blow smoke in the air around it’s own failings and obscure the truth.

We write of Culture Change often here, and for a reason. It simply makes sense to adopt to this newer model of caregiving. And, it saves many cents, too! McKnights LTC News has the scoop right here:

Nursing homes that have adopted aspects of the culture change movement, or at least strive to, are more likely to see benefits in resident satisfaction, staff retention, higher occupancy rates and improved operational costs, according to a recently released survey of directors of nursing.

In the report, which was conducted by The Commonwealth Fund, nursing homes were broken into three groups: culture change adopters (31%), culture change strivers (25%) and traditional nursing homes (43%). Of the adopters, 60% reported improvements in operational costs compared with 31% of traditional nursing homes. Additionally, staff absenteeism decreased in half of the homes that adopted culture change, according to the report. Roughly a third of traditional nursing homes reported any such similar decrease in absenteeism. Culture change is a movement emphasizing resident-centered care in nursing homes.

Over at the Huffington Post, Harold Pollack speaks up for direct care workers- CNA’s, home health aides and others. It’s good when our voice is heard at the bigger blogs.

Every day, my family and countless others trust direct care staff to care for our loved ones. Yet we pay them less than we pay many of the college students brewing skinny lattes at Starbucks. Meager staff pay and benefits are the shameful back story of the generally positive effort to move intellectually-disabled people out of state institutions into the community. Starting hourly wages for direct care workers are typically a dollar or two above minimum wage.

Not surprisingly, low morale and turnover are huge problems. Families hope that the job means more than a paycheck, especially since we can’t always monitor what they do. We hope that direct care workers treat our loved one with diligence, dignity, and skill he deserves. Many do. Given human nature, not every care worker earns the paycheck she doesn’t get to receive. I’ve met too many people who clock in, take the cruddy paycheck, and don’t do much else. If I got $9.85 per hour, I wouldn’t be the Energizer Bunny, either.

We do have our share of lazy peers who make us all look BAD. But in every line of work I have ever seen, including our Congress, there are lazy and uninspiring people to tend with.

The NYT has another good article up today:

Serious Deficiencies in Nursing Homes Are Often Missed, Report Says

WASHINGTON — Nursing home inspectors routinely overlook or minimize problems that pose a serious, immediate threat to patients, Congressional investigators say in a new report.

In the report, to be issued on Thursday, the investigators, from the Government Accountability Office, say they have found widespread “understatement of deficiencies,” including malnutrition, severe bedsores, overuse of prescription medications and abuse of nursing home residents.

And this is news? Not to most CNA’s who work in nursing homes.

The nine states most likely to miss serious deficiencies were Alabama, Arizona, Missouri, New Mexico, Oklahoma, South Carolina, South Dakota, Tennessee and Wyoming, the report said.

More than 1.5 million people live in nursing homes. Nationwide, about one-fifth of the homes were cited for serious deficiencies last year.

“Poor quality of care — worsening pressure sores or untreated weight loss — in a small but unacceptably high number of nursing homes continues to harm residents or place them in immediate jeopardy, that is, at risk of death or serious injury,” the report said.
[…]
The study was done at the request of Senators Charles E. Grassley, Republican of Iowa, and Herb Kohl, Democrat of Wisconsin, who is chairman of the Senate Special Committee on Aging.

I have an idea for the Senators.

Put a CNA on every survey team. A CNA who has worked in nursing homes, who has some experience, who is savvy and can point out the cover ups and lies and distortions that we KNOW are happening.

With all due respect to the average survey team made up of people with numerous fancy titles, education and college degrees, who is better at identifying abuse and neglect than the seasoned CNA?

All the intellectual brilliance in the world will not be able to sniff out perfumed and powdered and otherwise fluffed and buffed, but not truly clean (as in showered recently) residents.

No degree in any field can separate real malnutrition caused by lazy and uncaring aides who don’t take the time to feed residents who cannot feed themselves, from the sad but very common and natural lack of desire to eat we see with people with late stage dementia.

Only a CNA can assess a unit for the true needs of any given resident population…a quick look around, copies of assignments, and observation of am or pm care pretty much tells it all. And CNA’s know the odors of pretty smelling air fresheners used during the inspections to cover up the real scents of a nursing home.

How about this: CNA’s who are part of a survey team should seek employment at facilities a month or so before the scheduled visit…get hired and work a few weeks beforehand. Then file a report with a lot of useful and honest and true information.

I suspect most nursing homes would sorely fail their inspections if this were to happen. The fact is nursing homes operate one way when it’s inspection time (”THE STATES’ HERE!!*) and another way the rest of the year (*ARE WE SHORT AGAIN TODAY?!?*) It’s time to re-think how surveys are done and who makes up these teams. By not having a front line worker on the team, the team always misses out on what’s really happening, since, it is the front liner who really KNOWS.

Send Senator Grassley a message about this HERE. He’d love to hear from CNA’s, this I know.

And Senator Kohl likes feedback as well…contact him HERE.

Over at Long Term Living (used to be Nursing Homes Magazine) they’re asking for ideas and solutions to the ever present big time issue: STAFFING PROBLEMS. Go over and leave your thoughts and opinion. I did.

Up in Canada an investigation is under way. A nursing home resident died as a result of a fall, out of a mechanical lift.

The faulty lift equipment that caused the death of an east Toronto nursing home resident had already malfunctioned twice within the same long-term care chain, according to a health ministry document obtained by the Star.

Leisureworld Caregiving Centres documented the two earlier incidents when the same type of lift broke down at another home in its chain, last November and December, according to the ministry’s May 8 letter to Health Canada, warning of safety hazards. The letter said there were no injuries as a result of the first two malfunctions.

It was not until Wally Baker’s April 30 death that Leisureworld replaced the lifts (motorized equipment used to move residents from bed to chair to toilet) throughout its 26 homes in Ontario. But chief executive officer David Cutler said the company took action to address the problems last November and December, including contacting Health Canada, which monitors nursing home equipment.

Wow. Pardon me for a moment here. I have worked with all kinds of mechanical lifts, of every variety and made by most manufacturers. Some are better than others; some are easier to use. None ever presented a hazard to my residents though, as long as I used the equipment correctly. We were trained by the manufacturers on how to use each lift, through the years, as we got them. I really don’t understand how this happened.

Has anyone ever experienced a close call with a lift? Was it the lift itself, the staff using it improperly a (lack of training on the proper use)? Was it the resident being unsafe and jeopardizing the transfer? I’ve seen that happen many times as well.